Other solutions included incorporating other perspectives (e.g., carers) or combining/weighting responses. Participants were in favour of better informing, but not influencing the public. They viewed experienced responses as more accurate, but noted potential biases. Participants were surprised that health resource allocation was based on hypothetical responses. Most participants found imagining the health states difficult without experience, with those aligned to mental health harder to understand. Twenty themes emerged, clustered by the three discussion points. Third, a semi-structured discussion explored participants’: (1) understanding, (2) opinions, and (3) potential resolutions. Second, participants were presented with prior results on the same task from a public (hypothetical) and patient (experienced) sample. Participants self-completed the EQ-5D-5L, before reporting the expected consequences of being in two hypothetical EQ-5D-5L health states for ten years. Six focus groups with 30 members of the UK adult public were conducted, transcribed verbatim, and analysed using framework analysis. This study explores public understanding of, opinions on, and potential solutions to differences between hypothetical versus experienced responses, in the context of allocating health resources. ![]() Responses from hypothetical and experienced valuation tasks of health-related quality of life differ, yet there is limited understanding of why these differences exist, what members of the public think about them, and acceptable resolutions.
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